Friday, June 29, 2012

Happy 4th Birthday Girls!

Since I have been behind on posts, I thought I would post the montage 3 days early! Happy Birthday to my three beautiful girls on July 2nd!

Wednesday, June 27, 2012

It's Almost Time!!!

Early birthday present... princess blankets! Obsessed with princess' right now.

The girls will be 4 in just a few days!!! They are so so excited. My tiny little babies are turning into such big girls :-(!

Hoping to have the montage done and uploaded soon. But without internet it has been hard.

Hoping to get it this week... so lots of pics and posts to come!

Makenna... There may be help afterall!

The lab, where we ordered Mak's breath test from, emailed me and asked that I call them to discuss her results - this was after I emailed them asking if I could have messed it up in any way. Well, I just got off phone with them and they were awesome! She said they had a board meeting about my questions to make sure they gave me the correct information and could find a way to help us. She said this was a text book test and results were very reliable as test was taken perfectly. All the numbers were correct, her CO2 numbers were perfect, which is very important. She new Mak was a child because the numbers are usually not that high in adults and her little body just can't handle the sugar. She also said they all suspect Small Intestinal Bacterial Overgrowth (SIBO) after I asked her about it, since I had heard it from others too. She also mentioned, if she has SIBO, it can be controlled with medicine and could possibly be the cause of the Fructose Malabsorption and could make the symptoms go away and we may discover she does not even have Fructose Malabsorption. It is a common side effect of SIBO, the body CAN NOT absorp sugar very well, if any at all. After I told her we were struggling to find a doctor to help us, she said that it is very common because not many doctors are familar with this. She then confirmed I was in Indiana and asked how far away from Indy we were because University of Indiana, Indiana Health (Riley Childrens Hospital) recently bought a bunch of new breath testing equipment because they are really getting into researching this. She is suppose to be emailing me their number and a possible doctors name! She is also emailing me some information on the SIBO breath test that she and the board suggests we should take.

So I have a call into our pediatritcian to discuss with her and go over the breath test results as well as the other doctors that have not been able to help us. And hoping for a referral to Rily. However... not being in our network... that bill or bills are going to suck us dry. BUT, if we can make Makenna better, make her feel better and possibly better all around for good... then this is worth every penny!

Friday, June 22, 2012

Positve Test Results for Makenna

Makennas Fructose Hydrogen Breath Test came back positive. The numbers were extremely high, higher than most... so I think we are going to take it again soon just to compare and see the difference. We just don't know where to go from here. Some other mothers who's kids have this are suggesting SIBO, Small Intestinal Bacterial Overgrowth because her numbers were so high. But again, no doctors here to determine this. It is left up to us to figure out.

We don't have internet right now, still seraching for a provider... so wont be able to post for awhile but do have some pics to post. So hopefully soon!

Wednesday, June 13, 2012

Girls Birthday!

The girls are going to be FOUR in a couple weeks! Where did time go? They are going to love their presents... a doll house and a stroller, play pin, and bouncer for their babies! They also get their favorite princess blanket for their NEW big girl beds! As you can see from the picture the three twin size beds pretty much take up the entire room! Josh is going to cut one of the beds down a few inches to make it fit under Mak's bed so they have more open space. I worry at times about Mak's bed being so high, but she does really well with it and JJ and MJ do well when they play on, but do prefer their beds on the floor! Thanks to Tracy for the floor beds and to my friend Andrea for helping us out with the mattress's! And I can't forget a big thanks to my dad and Josh for getting the beds put together!

Summertime Fun!

The kids sure do LOVE summertime. It is getting much easier with them, we don't have to worry so much about chasing 4 kids going in 4 different directions so much anymore... except for Jace! It sure would be nice to get a fence though... I think I would take them out on my own and they would love it. We will be going camping in August with the girls. I am sure they will have a blast and should be easier than it was last year... especially not having to deal with Makenna's melt downs! Poor Jace will be left behind again, I just worry taking him somewhere like that for two days... so much for him to get into and so many places to take off to! He will go next year for sure and I will make sure grandma does something VERY VERY fun with him. Probably have her and grandpa bring him up for the last day to play for an hour or two. We will see!

And we are going to the lake with the my family end of June for my dad's birthday. That should be fun considering we will be surrounded by water! This too will be interesting, but lots of people to help, so should be fun!

What is Fructose Malabsorption?

We will be doing our (at home) Fructose Malabsorption test to get an official diagnosis since NONE of the doctors here know anything about this. So I thought I would post an article I found that has helped me understand this.

~August 20th, 2011

What Is Fructose Malabsorption Disorder? By Oling Green
What is Fructose Malabsorption? Fructose Malabsorption used to be known as Dietary Fructose Intolerance, this term has been abandoned for two reasons Firstly, to avoid confusion with Hereditary Fructose Intolerance which is a genetic condition that can result in liver damage; secondly, an "intolerance" is a condition in which absorption takes place successfully, but the body cannot process the substance. For example, those with Lactose Intolerance can absorb lactose, but once absorbed the body cannot metabolise it. Those with Fructose Malabsorption cannot absorb the fructose, and it is this lack of absorption that results in symptoms.

As reported in Gerald Huether's "Tryptophan, Serotonin and Melatonin" when Fructose Malabsorbers consume fructose, it travels through the digestive system unabsorbed, eventually reaching the colon intact where it is broken down by the body's intestinal flora into hydrogen and carbon dioxide. Fructose arriving in the lower intestine intact also interferes with the efficient absorption of the essential amino acid tryptophan. Tryptophan is known as an "essential" amino acid because the body requires it, but cannot synthesize it. Tryptophan must be obtained from dietary sources. Those with Fructose Malabsorption who ingest fructose have significantly lower levels of tryptophan in their blood than members of the general population. As tryptophan itself is a mood stabilizer and is also necessary for the body's production of serotonin and melatonin (two important neurotransmitters), Fructose Malabsorbers score significantly higher for depression than those without Fructose Malabsorption.

What are the symptoms? The initial symptoms of Fructose Malabsorption are gastrointestinal, and are remarkably similar to those of Lactose Intolerance. The ingestion of foods containing fructose can cause bloating, flatulence, abdominal discomfort and diarrhea. The severity of symptoms varies widely from person to person. These symptoms are the result of the bacterial breakdown of the fructose in the colon into carbon dioxide and hydrogen and generally manifest within a few hours of ingestion of foods containing fructose, though some experience delayed reactions, making it difficult to connect consumption to symptoms As the fructose interferes with the body's ability to absorb tryptophan, the imbalance of neurotransmitters results in depression, irritability, and anxiety usually a day or two after ingestion. Again, these symptoms can be experienced in varying degrees and on varying timelines depending on individual tolerance and the quantities of fructose ingested. I Think I Might Have Fructose Malabsorption Disorder.

What Should I Do Now? An easy, harmless first step in determining if you may have Fructose Malabsorption is an Elimination Foodplan. Simply, this involves eliminating from your diet anything that has any amount of fructose for a period of about six weeks If you do have Fructose Malabsorption, you will start to notice a positive difference in the symptoms within the first week. As the weeks progress, you should feel better overall. After the six weeks have elapsed, try introducing a small amount of a fructose-containing food. If you have Fructose Malabsorption you will generally have a gastrointestinal reaction within a few hours. If you have no reaction, but the Elimination Foodplan did make you feel better, try another fructose-containing food.

Many Fructose Malabsorbers can tolerate certain foods that others cannot. Everyone has their own tolerance threshold. If you have a reaction, and suspect you might have this condition, make an appointment with your doctor. Fructose Malabsorption can be diagnosed with a breath test. Usually a hydrogen breath test is used, but ensures you also receive a methane breath test. In approximately ten percent of all Fructose Malabsorbers, the bacteria in the colon produce methane rather than hydrogen. It is important to be formally diagnosed as Fructose Malabsorbers often have other digestive conditions such as Lactose Intolerance or Celiac Disease. You may have to be diligent, as Fructose Malabsorption is not as widely known or understood as Lactose Intolerance, even amongst healthcare professionals.
Is Fructose Only Found in Fruit? Fructose is found in all fruits, to lesser and greater degrees. Apples and pears have the highest amounts and are universally intolerable to those with Fructose Malabsorption. Fructose, however, is not the only form of this sugar that Fructose Malabsorbers must avoid. Fructans, which are chains of fructose molecules ending in a glucose molecule are also unabsorbable. Tin's widens the field of troublesome foods to include grains like wheat, spelt, kamut, and brown rice; as well as vegetables such as onions, leeks, asparagus and artichokes. As the source of the gastrointestinal symptoms is the bacterial breakdown of fructose in the colon, any food which adds to the bacterial population just makes things worse. This means Fructose Malabsorbers must avoid any foods which have active bacterial cultures like yoghurt, or are probiotic or prebiotic like chickory (inulin).
If I Have Fructose Malabsorption, Will I be Off Wheat and Fruit Forever? Are There Pills Available, Like Those for Lactose Intolerance? The idea of an Elimination Food plan is to eliminates all foods that have even the smallest potential to cause problems. This allows your body to reach a state in which you knowfor certain it is not being affected by any fructose presence. Once this state has been established, you can reintroduce foods containing fructose (or fructans) one at a time in small doses. It is important that foods be introduced in small amounts so that any reaction is minimal. The food should be consumed only once, then strict attention must be paid to any changes in your body over the proceeding days. When reintroducing foods, it is a good idea to begin with foods that contain the least amount of fructose or fructans. This will minimize the possibility of a drastic reaction.
Also keep in mind that commercially frozen foods often contain different amounts of fructose than their fresh counterparts, and cooking can alter the amounts of fructose as well. Fresh strawberries, commercially frozen strawberries, and cooked strawberries may affect you to differing degrees. Through systematic experimentation, you will eventually develop a list of 'forbidden foods", and "only in moderation foods" that will be unique to you. Currently there is no medicine, no pill and no therapy for Fructose Malabsorption other than fructose avoidance. However, most Fructose Malabsorbers can ingest small amounts of fructose with reduced symptoms provided they also consume an equal or greater amount of glucose at the same time. The reason for this is unknown, but it is only effective in small amounts.

Because of this phenomenon, small amounts of sucrose (which is a one-to-one ratio of glucose to fructose) can be tolerated. It is, in essence, fructose with a glucose "dose" built in. Sucrose is in most homes in such forms as table sugar, brown sugar, maple syrup or molasses. Honey contains both pure glucose and pure fructose, as well as sucrose. A pinch of powdered glucose should be added as "insurance" as the ratio in honey may vary. Powdered glucose, often sold under the name of dextrose, causes no negative reaction in Fructose Malabsorbers and can be used for sweetening without concern. Network with Others! Fructose Malabsorbers, like many other groups, have found each other online. Forums, bulletins boards and web groups abound. These are great venues for support, recipes and tips from fellow sufferers, but beware. As this condition is still widely unknown and misunderstood, many forums unwittingly circulate misinformation and supposition. If you wish to connect with others, bookmark several communities and read their postings regularly. Compare their information with your own research and your doctor's advice and choose your.~

I found this article to be very intersting as it explains it very well. Some symptoms Mak does not have, but many she does... and many in her own unique way as I am discovering is common in many kids who have this.

Sunday, June 3, 2012

Way behind, last few months.


 Mak swimming with Aunt Kris!
 Miss Maysie having so so much fun!
 Jaeli is quite the fish these days. She was not so good last year, but has really taken to it!
 Mak does the best though... she jumps in off the side, the stairs and even the diving board!
 Maysie swimming all by herself!


Only thing I have to say is... they sure do love their games!

Taking pictures of ourselves!

 Maysie does it constantly... she loves to take pics of herself!
 Pretty sure this was Maysie, but could be JJ??
 This is Maysie for sure!
And Miss JJ, she must have been crying cause Maysie was hogging the camera!