Monday, July 2, 2012

Riley Hospital

 Waiting for the doctor!
So we are home from a LONG weekend! Riley went well. Doctor listened and seemed interested in figuring this out. He said we had him scratching his head. He does not know a lot about Fructose Malabsorption, but is going to consult with a doctor friend (and a few others) who does know more to see what test we should do next and should be able to have them done in Fort Wayne and results sent back to him. He wants her to take 1 cap full of Miralax a day, he thinks the mood swings and rage are from being so constipated since she does not poop but every 3 or 4 days, sometimes longer. And then he thinks the rash could be something specific, can't remember the name but possibly send us to a dermatologist for it. We had about 10 vials of blood taken on her to test certain things... then wants to repeat all of them when she is in an "episode" to compare. Also to check her sugar during them and compare to when she doesn't have them. May put her on zinc pills depending on what the labs come back. So after the results come in, we could do a variety of tests to start ruling out Crohns, Celiac, IBS, Small Intestinal Bacterial Overgrowth, other food intolerances or malabsorptions until we find the cause... he agrees that there is most likely something causing her reaction to fructose. So overall, hopefully we can get somewhere and figure out how to live with this, possibly get rid of it or control it and stop the rage and rash... not fair to her or the others for it to happen so if we can stop it in any way... then we need to do all we can to make sure it happens.

We stayed at Josh's aunts house on Saturday (in Indianapolis), with all four for the girls birthday party with his family. That was nightmare... just the trying to get four kids to sleep and stay asleep. The rest was a good time. Thanks to Aunt Tracy for letting us use her house and awesome pool! And since we were already there and I had to be back with Makenna on Monday, she and I just stayed and crashed with Aunt Jarilyn. Josh took the other three back home in the van Sunday afternoon, along with Grandma J and both Grandpa's and left the car with us. Saved me a trip to Indy... car was already there so made sense. Makenna had WAY TOO MUCH fun with Aunt Jarilyn and she got spoiled rotten. Wish I could do that with all of them.. minus Riley Hospital of course. Sucks only she gets to have that one on one time. But we went to Dave and Busters and Mak had a BLAST playing the games and collecting tickets and then of course, picking out prizes! She slept great that night, so it was nice to get a full nights sleep considering I only got 2 hours the night before at aunt Tracys, chasing 4 kids around all night on and off from 11 p.m. until 5 a.m. when they got up for the day.

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